Johns Hopkins Medical Institutions

Childhood cancer patients enrolled in clinical trials need clearer communication about their role

Published in Hematology Week, April 12th, 2010

A small study of children with cancer enrolled in therapeutic clinical research trials shows that they don't fully understand what physicians and parents tell them about their participation, nor do they feel they are genuinely involved in the choice to take part.

The study, led by Yoram Unguru, M.D., an associate faculty member at the Johns Hopkins Berman Institute of Bioethics, will be published online March 29 in the journal Pediatrics.

While an estimated 70 percent of young cancer patients participate in clinical trials during their treatment, more than half of the 37 children who were interviewed for the study did not know or recall that their...

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Source: Hematology Week (2010-04-12)

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