Cystic Fibrosis

New data from Harvard University illuminate research in cystic fibrosis

Published in Hospital Law Weekly, January 8th, 2009

"Because many patients with cystic fibrosis (CF) continue to survive into adulthood, discussion of end-of-life care decisions between clinicians and patients becomes a crucial part of CF adult care. Advance care planning (ACP) promotes alignment of patient care at the end of life with an individual's goals, however minimal research exists on ACP in CF," researchers in the United States report.

"We surveyed adults enrolled in the Project on Adult Care in Cystic Fibrosis (PAC-CF). We assessed experiences with ACP processes and communication and sought to identify factors associated with completion of an advance directive. The mean age of respondents (n = 234) was 34 years...

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Source: Hospital Law Weekly (2009-01-08)

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