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Huntington Disease

Data from University of Iowa, College of Nursing advance knowledge in Huntington disease

Published in Pain and Central Nervous System Week, September 20th, 2010

Current study results from the report, 'Development of the Huntington disease family concerns and strategies survey from focus group data,' have been published. "Health concerns and management strategies among families of young and middle-age adults with Huntington's disease (HD) are unknown. This study developed and tested psychometric properties of the Huntington Disease Family Concerns and Strategies Survey (HDFCSS)," researchers in the United States report.

"Focus group data from 91 adult family members were used to develop content. Content analysis yielded four domains that were transferred into Personal, Person With HD, Community Health Care Services, and...

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