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Huntington Disease Genetics

Reports from School of Public Health add new data to research in Huntington disease genetics

Published in Physician Law Weekly, August 15th, 2007

Scientists discuss in "The roles of family members, health care workers, and others in decision-making processes about genetic testing among individuals at risk for Huntington disease" new findings in Huntington disease. In this recent report, researchers in the United States conducted a study "To understand how individuals at risk for Huntington disease view the roles of others, e.g., family members and health care workers, in decision making about genetic testing. Twenty-one individuals (eight mutation-positive, four mutation-negative, and nine not tested) were interviewed for approximately 2 hours each."

"Interviewees illuminated several key aspects of the roles of...

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